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a good moment

March 29, 2012

Penelope has been pretty tough this week. Hard to reach.

But tonight I was granted a sweet, sweet moment.

I was letting her flip through a book in bed while I changed Arthur for the night.

“Hey Mama… this is like Penelope… this girl…”

“Oh yeah? Why?” (distracted)

“‘Cause the baby in your tummy is my other brother.”

And I just about fell over. It’s the most conscious and unprompted statement she’s ever made about the pregnancy.

So, so blessed.

It’s a…

March 28, 2012

(waving hello)

 

(sleeping with feet crossed and hands behind head)

 

(sweet profile)

 

boy.

due in august.

and we couldn’t be more thrilled.

marathon weekend

March 25, 2012

…but it was a really, really good one.

You have my permission to scroll down to the pictures. Just putting that out there.

March 17, 2012

This was a good week. Probably made better by the stark contrast to last week’s struggles and disappointments. When you’ve got months of anticipation invested into a single meeting that goes poorly, there are some challenges.

But I’m happy to report that there is no crisis of faith, or of any other nature. There is actually sweet relief in remembering that the world still spins, the sun still rises, and God still sits on the throne – even if we’re to wade through therapy/intervention stuff without the help of our local school district {or, you know, any funding}. I wondered how I’d feel if the worst-case scenario happened {I’m just an optimist that way} – and I asked {pleaded with?} God to sustain me through disappointment without allowing me to lose my footing. To help me see the value of the last few months of reading, preparing, and essentially waiting, even if after the big meeting/decision, we were back to the drawing board. To give me the wisdom and faith to know that our kid’s ability to thrive and progress doesn’t depend on this team of specialists, but on the One who created her and loves her so, so dearly.

And He did.. He answered.

But not sheepishly. He answered in such a way that my mind was flooded {overwhelmed?} with reasons to thank him, and know that he means this for good. That doesn’t always happen for me. Sometimes I muddle through self-pity, basking in my own {sinful} disappointment, and it takes a kindly person who knows me well to… not let me linger in the murk {ahem, Casey}.

As I was saying. My mind was flooded. This detour in life {hah!} has created opportunity to build relationships with people we never would’ve otherwise known very well. It’s given us a sense of heartfelt and knowing compassion for others in similar situations. It’s caused us to pause, reflect, and re-examine so many of our motivations. It’s rooted out sin. It’s made me love Casey more. It’s taught us a whole new language, and given us so much insight into the kid God has entrusted to us. It’s caused us to marvel at the timing in it all – we found out while she is so, so young. And here, surrounded by family and resources. It might’ve come at a confusing time – feeling just on the verge of launching into ministry – but how much harder would it have been to find out and leave the field abruptly to get answers or help?

And another thing. We both kind of laugh about it. I’ve written about it before. But we’re getting better at living in seasons of waiting.. more comfortable anyway. We’ve had some practice at it these last couple of years, and it almost feels normal. It hasn’t robbed us of our ambition or motivation, but rather stripped away some of our attachment to timing, or a smooth and easy path. It’s still not what I’d chose, but I can feel little seeds of patience planting in my eager-to-know-what’s-next-and-have-everything-settled-always-and-quickly-please heart. Seeds of patience, seeds of trust. Or sprouts germinating? Or something? I’m not very agricultural, truth be told. Don’t let the barn fool you.

((Here’s where the pictures start))

So like I said. This was a good week.

Arthur is proving that it isn’t too late to learn tough skills. Like how to have independent play time in a place and duration of his parent’s choosing. Poor neglected second kid – he had a tumultuous first year, and then I went back to work… so he hasn’t had the same structure or attention his big sister did. Or practice at important skills. But like I said – not too late!

And he ate shrimp pasta for breakfast one day this week. At his own request. Proving again that he is thoroughly Casey’s son.

 

We started implementing occupational therapy tricks we’ve learned as a more regular part of Penelope’s day. We’ve noticed such a difference in her ability to communicate, process info, and complete tasks she often struggles with. Without shutting down {or melting down, which is the next step}. It’s been incredibly encouraging – even though the “sensory diet” kinds of things we’re doing sound completely batty. If you don’t believe me, just google “sensory diet.” Yes, we are those parents. And we don’t care who knows it.

The blanket remains from a burrito/swaddle kind of game… we just do things like that in between her normal day-to-day kid stuff. And she is responding so, so, so well to it.

 

….and I finally obtained a camera bag that I really like. I’ll spare you my impossibly picky list of qualifications, and just tell you that I found one that’s not perfect, but the closest I’ll probably find. And I love it. But I didn’t take a picture of it yet.

….and me and Case embarked on a conversation aptly titled “What should we do with our life?” Four hours, six pages of pro/con lists, notes, and ideas, two bowls of ice cream, and a pot of coffee later,  we had made real progress. And while we didn’t come up with any concrete conclusions, we’re still smiling and glad to be married, so I’d call that a success.

Things we’re learning these days (but will probably never have figured out)

March 6, 2012

We’ve been at this whole “waiting. learning. hoping.” stage for a few months now. It’s about time for another update, I think. At the very least, for my own processing. Feel free to look over my shoulder -

1. It is difficult (impossible?) to discern God’s will when we’re clinging desperately to our own will instead.

2. Parenting a kid who is wired a little differently than most kids can feel isolating.

3. Casey and I are not very good at taking breaks from thinking or talking about weighty things lately – and the stuff we’re trying to process just can’t be figured out in one night. Or several, apparently.

4. Many, many, many (well-meaning) people offer advice on how we might consider raising/educating/treating/disciplining/etc our Penelope. This can be difficult to navigate graciously.

5. There is a certain degree of emotional exhaustion that comes with parenting a kid “on the spectrum.” We’re learning that this isn’t reserved only for the time immediately following diagnosis, but more likely something that will continue for much longer.

6. We find such comfort in remembering God’s faithfulness to us through other challenging times. It’s that steadfastness we were promised, I think. Isn’t He kind that way?

7. Penelope is one of the sweetest blessings in our life. She is a remarkable kid. I’m genuinely so thankful for the way God knit her together. This didn’t change when we found out that her quirks/strengths/challenges had a name.

8. God has been really gracious with us – and been kind to give us insight into our daughter. It’s been affirming to hear specialists tell us that the strategies we’re employing at home are some of the best methods to help Penelope be successful. It’s surprising to hear because the trial-and-error (or more realistically, error-and-error-and-error-and-error-and-wait-this-one-works!) process started long before we had a diagnosis, or had done any specific reading. Honestly, we haven’t been able to get much help (yet?) from the specialists/therapists we’ve encountered, because our Penelope is so stinking smart, so this little encouragement has been hugely helpful and instructive.

9. Even through weary moments, I am confident that this refining season is good. Something I’m genuinely thankful for. And I don’t mean that in a Pollyanna kind of way. This isn’t a naive thankfulness, or a minimization of my own feelings. Are there tears? Oh sure. Do I wrestle with this? Of course! But those tears, that wrestling, lead me back to a loving God who can sympathize with all of my weaknesses. One who says that this sort of struggle produces a more genuine faith. And it’s true! I know that he has been faithful to me in the past, will surely be faithful in this, and won’t stop being faithful through whatever comes next.

10. Really, what I mean to say, is that a trial like this makes the gospel more real. I’m weak, but the one who had victory over death – on my behalf – surely isn’t.

So praying friends, keep praying. We’re grateful for you.

It’s a big day!

February 27, 2012

We’re nearly out the door for sweet Penelope’s (last) assessment before the IEP.

Casey’s been having a pretty serious conversation with her, you know, in preparation…

Usually my office looks like this…

February 18, 2012

But sometimes… on rare occasions… it looks like this, instead.

And then I come home to this…

And this..

And this…

With a whole weekend ahead of us.

Yes, please.

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